(Sorry if this is not 100% correct. It is my recollection)
Isaac and Jackie have been going to this church started by old friends of ours. Last Sunday, Jackie reported that the service was excellent. Several kids took to Isaac, including one teenager who invited him to come back and go to Youth. They had a Baptism that day.
Isaac was very interested and asked what it meant to be Baptized.
Mom told him it was "like a second chance" at life, and why.
He obviously picked up on the meaning because he then said, "God gave me a second chance, too. How can I be baptized?"
-M
Tuesday, December 20, 2011
Update 12/19/11
ARD Meeting
Jackie and I went to the ARD meeting at his middle school Monday. CNS sent one of the therapists working with him on school work. Her past experience helped us formulate a plan for Isaac to return to school.
Because the school normally has eight classes during the day, we all felt this might overwhelm Isaac. However, on Wednesday/Thursday they have a modified schedule of four classes. This seemed the proper choice to get him back in with minimal issues. With four classes he will be able to adjust more slowly to the environment, and we will be more likely to catch any issues from the reintegration.
His workload, according to our CNS therapist, is difficult because of his slowness. Modifications were put in place to assure he would get assistance, if necessary, or be allowed to use aids (like a laptop or similar) to get his work done.
Jackie and I went to the ARD meeting at his middle school Monday. CNS sent one of the therapists working with him on school work. Her past experience helped us formulate a plan for Isaac to return to school.
Because the school normally has eight classes during the day, we all felt this might overwhelm Isaac. However, on Wednesday/Thursday they have a modified schedule of four classes. This seemed the proper choice to get him back in with minimal issues. With four classes he will be able to adjust more slowly to the environment, and we will be more likely to catch any issues from the reintegration.
His workload, according to our CNS therapist, is difficult because of his slowness. Modifications were put in place to assure he would get assistance, if necessary, or be allowed to use aids (like a laptop or similar) to get his work done.
Thursday, December 15, 2011
12-15-2011 Update
There are more times now that Isaac is acting like a normal kid than anything else, but let me tell you about the opposites.
The Good: We were at our family dinner place on Tuesdays (cheap dinner night). It is usually loud, prompting Isaac to want to leave. He DIDN'T NOTICE!
Also, we were in family conversation and Brea was saying something about a university in Pennsylvania. She had no sooner spoken the words, when Isaac looked up and said, "So, would it be called P.U.??" That quick wittiness in his processing is coming back. Needless to say we got a great laugh out of it, but Isaac tickled himself so much with it he had tears.
The Challenges: Demonstrated movement using conscious thought is still on the slow side. This is more pronounced in the morning and evening when he is either not fully awake or very tired.
We also notice when he is eating dinner, he will eat each thing on his plate completely before moving to the next item. While this is also something normal for a twelve year old, I think we are also seeing limitations in Isaac because he will not touch his drink until he is completely done.
From FaceBook:
Isaac saw Dr. MacDonald (the PMR Dr who's been following him since Childrens), and said he is doing amazing & shows very little indication of ever having a TBI (Traumatic Brain Injury)! He even noticed a marked improvement in balance and coordination from the last visit, 4 weeks ago. Praise God - He is truly amazing!!!
The Good: We were at our family dinner place on Tuesdays (cheap dinner night). It is usually loud, prompting Isaac to want to leave. He DIDN'T NOTICE!
Also, we were in family conversation and Brea was saying something about a university in Pennsylvania. She had no sooner spoken the words, when Isaac looked up and said, "So, would it be called P.U.??" That quick wittiness in his processing is coming back. Needless to say we got a great laugh out of it, but Isaac tickled himself so much with it he had tears.
The Challenges: Demonstrated movement using conscious thought is still on the slow side. This is more pronounced in the morning and evening when he is either not fully awake or very tired.
We also notice when he is eating dinner, he will eat each thing on his plate completely before moving to the next item. While this is also something normal for a twelve year old, I think we are also seeing limitations in Isaac because he will not touch his drink until he is completely done.
From FaceBook:
Isaac saw Dr. MacDonald (the PMR Dr who's been following him since Childrens), and said he is doing amazing & shows very little indication of ever having a TBI (Traumatic Brain Injury)! He even noticed a marked improvement in balance and coordination from the last visit, 4 weeks ago. Praise God - He is truly amazing!!!
Tuesday, December 6, 2011
Update 12/6/2011
Sorry all,
There were no updates since dad prepared and ran in the White Rock Marathon on Sunday 12/4. It was my first Half Marathon.
(See www.RefereeDad.com or RefereeDad on FaceBook for more)
We have much progress to tell about Isaac. The monthly update meeting progressed much better than expected.
From FaceBook:
God is still so in control of Isaac's recovery, as he continues to make progress ahead of schedule. The results discussed today were surprising to the case manager, who expected these type of numbers "6-8 weeks from now", as many of his "goals" were met in the varied therapies! Speed of processing & "carryover" (learning of new concepts/skills) is much better when it comes to cognitive work (school work, strategy, etc.), but still behind "normal" in fine motor skills. He's learning to type to help with his school work, so this should be interesting. :-) Balance, coordination, & endurance are excellent for his "post coma" stage. The entire CNS staff just "loves" working with him, as true to his name, he makes them "smile and laugh". Praise God for the continued gifts to us!
CNS is contacting Huffines about the T2 ARD (the meeting after 30 days, to set standards/goals). We are coming up on 30 days (next week). She wants to get these set, as they want him to attend Huffines 2 days a week starting in January. (He was even asking about that this morning... he's initiating so they see that as WONDERFUL, even though they would have gone down this path without his initiating. Counseling sessions are indicating to Stephanie that he was being bullied at school - name calling ("4-eyes", weirdo, etc.) so he's a little worried about dealing with "friends", even though he did have a wonderful time at his Block Party.
NOTE:
Please say a special prayer for our cousin who is recovering from surgeries and may have to go through chemo. He is in Southeast Asia with a large family. Ask specifically for a miracle for his recovery. Satan should have no hold over them whatsoever.
There were no updates since dad prepared and ran in the White Rock Marathon on Sunday 12/4. It was my first Half Marathon.
(See www.RefereeDad.com or RefereeDad on FaceBook for more)
We have much progress to tell about Isaac. The monthly update meeting progressed much better than expected.
From FaceBook:
God is still so in control of Isaac's recovery, as he continues to make progress ahead of schedule. The results discussed today were surprising to the case manager, who expected these type of numbers "6-8 weeks from now", as many of his "goals" were met in the varied therapies! Speed of processing & "carryover" (learning of new concepts/skills) is much better when it comes to cognitive work (school work, strategy, etc.), but still behind "normal" in fine motor skills. He's learning to type to help with his school work, so this should be interesting. :-) Balance, coordination, & endurance are excellent for his "post coma" stage. The entire CNS staff just "loves" working with him, as true to his name, he makes them "smile and laugh". Praise God for the continued gifts to us!
CNS is contacting Huffines about the T2 ARD (the meeting after 30 days, to set standards/goals). We are coming up on 30 days (next week). She wants to get these set, as they want him to attend Huffines 2 days a week starting in January. (He was even asking about that this morning... he's initiating so they see that as WONDERFUL, even though they would have gone down this path without his initiating. Counseling sessions are indicating to Stephanie that he was being bullied at school - name calling ("4-eyes", weirdo, etc.) so he's a little worried about dealing with "friends", even though he did have a wonderful time at his Block Party.
NOTE:
Please say a special prayer for our cousin who is recovering from surgeries and may have to go through chemo. He is in Southeast Asia with a large family. Ask specifically for a miracle for his recovery. Satan should have no hold over them whatsoever.
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