Showing off my Aunt 'Chele kiss. |
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We start our therapy today. We actually have a schedule. I'm glad that he was calm and slept well last night, because today is going to be very overwhelming.
We start the day off at 10 with OT, 10:30 with PT, and 11:30 for Speech Evaluation.
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Mom arrived with fresh clothes and (more especially) shoes and socks. He dressed himself and then put his shoes on. He had slipped one on already tied, but the other was untied. He got the first 'over and under' before he started thinking about it and got stuck.
Breakfast came and Isaac ate 3/4 of it. He used the fork for the sausage, but preferred to use his fingers to eat the fruit loops one at a time.
OT came and walked us down to the gym. She started working with him on an iPad, which is something he likes. They played for about 30 minutes, then the PT came in and started working with him. She took him walking, while mom and I returned to the room. We heard him coming down the hall first. He was irritated, and we learned that when he returned to the gym and couldn't see us he got scared. It took him awhile to calm down, then lunch came.
BBQ (yum!) . Mom made him a sandwich out of the roll and the meat.
The Speech therapist came in about the time we were done with lunch. He started to get irritated until I told him that she was not going to move or touch him, but teach him how to talk. He then loosened back up and worked with her for a bit before getting lost again. He was really worked up over today, and even gave mom an issue going to the bathroom.
The Speech Therapist said this is common, and that it would reduce over time. It's good to hear confirmation.
He is now napping.
After nap we decided to explore the building. It is not very big, but we were invited to a craft time. Unfortunately, craft time is too busy with sights and sounds (other, smaller children and music) that we had almost instant overload. We opted for the end of the hallway instead where there was a bench to sit on, and less noise.
We then went through the din and out the back door for some sun, where we found a basketball and 5 ft hoop. Unfortunately we couldn't get the shots to get anywhere near the rim....and frustrated again, so we went out in the grass and sat on a bench for about 10 mins to cool off. Coming back, we found that we were locked out, so had to buzz the nurse to come let us in.
Mom thought we were needing the bathroom when we really were trying to get away from the noise, frustration, and overload. Dad held us in the bathroom and let us calm down, then took us upstairs to the teen area where we could chill on the low teen couch (Dad did) or lounge on the loooooong bench with pillows (Isaac did). Mom joined us and sat with Isaac while we watched TV.
Later, back in our room, we were visited by friends. One, who is active duty Army, gave us her coin (with a St. Christopher) and necklace (with a Wounded Warrior dogtag) she wore in Iraq. We kept fascinated by those the rest of the evening.
Ann and Stephen came to see us. Stephen was definitely remembered fondly. It was the first time Isaac saw someone and got out of bed to give them a hug. He met Stephen halfway across the room. While they were there, sister Brea and Aunt Michele came in with gifts from all over.
Dad's note: I thought I needed a truck to "move out" of Children's. I think I will need it again to come away from OCH. Oh, and by the way, whoever delivered the chicken with corn and green beans.... I want lessons from you!! That was AMAZING!!! (You know who you are, and thank you very much!!!)
Mom reported at the end of the day:
Everyone but mom and Isaac left at 8:30, and mom reported that Isaac was definitely difficult to get to take his medicine. Isaac got a 'chele kiss.
1 comment:
Sorry about that last post, I thought the comment field was the word verification, so that was my word verification. Feel free to remove. Anywho, I am thrilled to read the progress everyday especially since we are unable to be there with you guys. Praying for you everyday.
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