Monday, September 19, 2011

9-19-11 (Monday) Bright eyed and bushy tailed

This week's posts will be updated throughout the day, since dad is sitting and is going to be bored.

What a difference a full night's sleep can make.I kept him from his evening nap and he slept all night.
Bright eyes and smiles as dad came in and woke us up. We are repeating words and phrases like a mockingbird, and they have "sound"! We dressed, had a breakfast of champions (french toast and Frosted Flakes), and discussed colors while eating. We recognized when we didn't know some colors, but found that if we hear them we will remember later. 
We played War with dad with our cards from the alien box. Got bored after a couple rounds, but then told dad we needed to go to the gym for OT. (Oh, we remember that!) We still had 30 minutes, but after I explained the schedule change the little toot went over to the schedule to "confirm" it was really at 8:30. LOL
Perfect timing. At the moment we were headed for the door, the nurse tech came in and had to make us wait for her to get vitals. She asked what we had for breakfast. We were apparently not interested in remembering that, so shrugged. We had to graduate to a bigger blood pressure cuff, since the little one was throwing high numbers. The larger one worked fine.


We got to the gym and waited on our OT person, who took us into a quieter room to work. Dad said he would go back upstairs, since my presence usually distracts him. 

Isaac came back with the PT man. He said they played soccer in the hallway, and that Isaac was physically ready for bigger and better things. Dr. Beard saw him in the room and asked about the morning. He seemed satisfied with Isaac's progress. and was interacting well with him. Took meds and watched dump.com videos with dad, laying on the guest bed. 

The NeuroPsych came in and discussed a suggestion of eventually moving him to PATE in Allen or CNS in Irving as a discharge strategy. Both are going to come introduce themselves as options, and give us an overview of their services. OCH is a medical rehab, where both of these are neural rehabs who can focus more on neuro and help him learn to cope with any behavior and coping issues. This will not happen overnight, but once we get the meds leveled out it will certainly be an option.


Seems someone mis-coded the OT twice on the schedule. Our tech verified that they only have him once during the day. Strange it was not caught before they posted it. He was sure he would get more time on the Wii or the iPad. (lol)


The neuro docs came and looked as if they liked what they saw and heard. We talked about the colors, and so tried to get Isaac to say "blue". He didn't peg it, but instead said "Azul". We all got that one!! Different language, but it means the same thing.


We set up the little computer and got Bejeweled Deluxe on it for Isaac. He seemed to think it was neat, but making it work was not conducive to his processing today. While we were working on it, our PT tech came back in and took him to NeuroPsych.

Mom did good for lunch. Isaac had pizza, applesauce, and chocolate milk. Isaac ate it well, but the after lunch blowout was not good. We rested, and our teacher is going to see us at 3 instead. We also have time for our afternoon Ritalin to take effect. 

It seems that divinity continues. After speaking with the representative of CNS on the phone, we have discovered that the facility is very close to where Jackie works. Moreso, the description seems to be the direction we wish to pursue for Isaac. We will know more after meeting with the Director tonight, then will meet with PATE Directors tomorrow at lunch.


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PATE - ??
CNS - Center for Neuro Studies 

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