9-15-11 (Thursday) First Day of (OCH) School
We were initially approved for 1wk here, and that ends tomorrow. Prayers for today - insurance will approve another week at minimum... & for continued progress with Isaacs behavior & speech.
This is not a very good day for the family. We could use some pep. We are all having the attack of sanity check, and our minds are starting to give us grief.
OT had Isaac first and he stayed in the gym the whole time playing Wii and some other things. PT came to get him and were shocked he was in the gym. They kept him there and now he is with Speech.
So far pretty good. He is using his voice more today. He was "mad" this morning and the doctors let him "be mad for 10 minutes." We watched the clock, and once this was up he was much better.
The reduction in Seraquil really helped him wake up better.
Very good therapy sessions. Speech focused on reading and completing sentences and then identifying opposites. She said he did really well and knew the opposite before seeing the choices.
Jesse and Dad came to visit. Isaac was very difficult to respond. Seems like he was not "all there", but when he had moments of laughter or interaction he was better. Mom said she had to feed him, since he wasn't even attempting to eat. One thought was he was on too much of the Ritalin.
Our closest friend came to visit us with his mom. Isaac played bashful, and was not wanting to look at him, so Dad suggested "the boys" go down to the Teen Room. We got a nurse to unlock the door, and just chilled in there watching TV. Isaac was better on the way, but mellowed in the room a bit. Before long his head was back down on his hands, and he was not wanting to interact. The second thought was that he was depressed and bored. I still think it was a little of both.
They lowered his Seraquil in half tonight so he will sleep all night and are watching him tomorrow as well. Think it might be a reaction to the medicine combination, but too early to really tell.
Please pray for Isaac's spirit. They aren't sure if it's a reaction to meds, or if he's getting sick, or if he's bored/sad, or combo of all, but he was more lethargic and not "himself" at all today. :-(
I repeated my question about whether I could have damaged his heart, and if they will do a test to determine that at some point in time.
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