9-13-11 (Tuesday) - Rehab, Day 2

(Red lettered phrases are copies of posts from FaceBook, archived here for those who do not have the opportunity to view it there)

Seems our "meet no strangers" child has developed a hesitancy with people he meets for the first time. We feel for the therapists, who change during the weekend.

He slept for nearly 11 hours, which is good as he has a full day. They changed his rehab schedule, since PT was so stressful yesterday, to Music Therapy at 9. Hospital timing is not the same as working people. Many times there are delays. Unfortunately, when patients are used to promptness, delays are many times irritating.

Music Therapy did not start at 9 like it was supposed to.

Well, day not starting off well at all. Had him up & ready to go to Music, only they next showed :-(. We rested & were visited by other dr.s. Unfortunately, the rest relaxed us too much so that PT was only a series o walks - too tired/belligerent to do anything. Now in room resting more until lunch. I will be discussing the "no show" during the care conference!

Music therapist is a volunteer so they're not sure why it was a no-show. They do agree that this caused the downward spiral so far today -- not being on set schedule. We'll see how the rest of the day goes...

Today we have Music Therapy, PT, Care Team Meeting (with Mom), lunch, Neuro Psych, OT, then speech. I would like to suggest they do speech in the morning, before he is inundated with physical activity. That way we can maximize his ability to communicate. Passed that to Mom for the Care Team meeting.

The word is spreading. Seems the general Middle School story is that he collapsed and is still in the hospital. Close enough for "age appropriateness".

The decision team met today, and agrees that he is still too impulsive. He is still not fully cognizant, nor has clear enunciation in his speech, so is a risk for injury to self and frustration during communication. There are certain sounds that cause him to verbally stutter, and certain motions that cause him to physically stutter.

His therapies spiraled in the early afternoon because the music therapy person did not show up. Although a volunteer, it would have been appreciated to know she wasn't coming so we could set Isaac's expectations. Speech therapy, however, went very well.

Those prayers worked. The afternoon went very well! Excelled matching during OT, NP and better word work in speech. Had some visitors tonight and Isaac even sang a song! Less stressed going to bed. Day starts early tomorrow with new med @ 7a followed by another OT at 8am. Night all you prayer warriors!!

The Neuro team came in and were very surprised at his progress, and his ability to read some of his magazine to them. John and Barbara came to visit, and Isaac sang Happy Birthday to him.

Dad and Brea came in the evening. He is clearer than before, and seems to be retaining some things now. His oldest brother, Christopher, called and talked to him over the phone. Dad helped get him ready for bed, then took Brea and went back home.

The new push for prayer should probably include the insurance company and travel. I am determined to be there every day, but it is physically taxing. We were warned today that insurance does not like to continue 24/7 inpatient when the patient can walk, but he is still a danger to himself if left at all, and his impulsiveness has not been managed. That concerns us and the doctors, so we are all fighting the battle before it happens.