I have been seeing a steady increase in Isaac's abilities over the week, and documenting them here. Mom, however, has only seen him when he gets tired in the evening. His interactions are not great at that point, and his tiredness shows through more.
Mom took the early shift over the weekend to allow me time to run a 5K race and play in our adult coed soccer game, and to sleep in Sunday morning to ward off the soreness. She was able to see the bright and shiny Isaac in the morning, and how he was more the boy we know than any other time during the day.
Saturday -
Ok, so I've been here a while :-). With Isaac, waking up and now eating breakfast!
What a difference a week makes! Sentences, much clearer sounds and personality. :-). So much progress in a week! God is so good!
Today was fun -- held 3-4 sentence conversations w/Isaac, put together Legos, went for walks, discussed food & he asked about how long he's been away from Huffines & when he can go back. Yeah!!
A conversation from early today with mom:
Isaac: "So, I've been out of school 3 or 4 weeks?"
Mom: "3 weeks."
Isaac: "So how am I going to make that up?"
Mom: "How do you think?"
Isaac: "By working."
Jesse and dad came up this evening and watched Finding Nemo with him. He was alert and responsive well into the evening. In fact, it took until about 9:45 for him to finally go to sleep tonight. (Gotta watch the end of the movie, ya' know)
Sunday -
Came in this morning & Isaac was already awake and eating breakfast. Asked "where did you go?" I told him, & he replied "ok, cool". Love this boy & the progress he's making!
Dad brought Brea today. We also brought his favorite chair and a soccer field chair to give us more seating. Bubbie and grandad came to see him, and so did the nurse from his school. He went for a walk outside in the late afternoon, then came back for dinner. He was alert and talking to me and the nurse, but I could see he was starting to get tired. I sent mom and Brea on home since Brea has school and mom has to leave early to get back here tomorrow morning.
Tomorrow is the big day we are evaluated for transition to CNS. Pray we have a great day, and he is able to show them his abilities as well as gaps.
1 comment:
Great that "Mom" got to experience the morning with Isaac. It is so much easier to have a "Happy Heart" when you can see your loved ones in a good mood. At church we will continue to pray for the family, and as I said a few days ago, this BLOG makes it possible to keep the prayer warriors apprized of the progress their prayers bring. Our message at church tonight was about standing on the sidelines and cheering for Gods works. I think that is what our prayers for Isaac accomplishes.
The more I research the "HYPERBARIC" chamber treatment the more anxious I am to hear what the Drs. opinion is.
GWS
Post a Comment