Today Isaac is assessed by the team from CNS Irving. Please pray for his good mood and ability to show them his speech and cognitive skills. This transfer is the next step before coming home. Thanks!
Assessment went well. He was a little "quiet" (slow to respond & in quiet voice) but did answer most questions. Even recited the months backwards when asked! Can transfer as soon as dr here clears & CNS has approval from insurance. Yeah God! Yeah, Isaac!
Isaac: "TV"- as he points to the screen.
Me: "I know - but what are they showing?"
Isaac: "commercial"..."and another commercial".
Yep - that's our Isaac - stating the obvious!! :-)
I made it to OCH late last night, after finding as many traffic jams as I could on the way. (not!)
Anyway, since I was late I decided to restock the mini-pantry (Yes, Laura, we are STILL using it!) on the nightstand with cookies, chips, and more Dr. Pepper. This is actually more for the parents than Isaac, but that's ok.
Isaac was up and moving about the room. Jackie told me he was now going to get PRN seraquel for the afternoon, and if that worked PRN for the morning as well. I think it is a good idea to keep with the night dose for now. Regardless, we are at the minimum dosage. The goal is to wean him off the drug by the time he transfers to CNS.
I have to remind him to "use your voice" when he speaks sometimes, because it comes out in whispers. He is saying the words, just no voice to them, and has to remember people have to be able to hear what he is saying.
He has that little boyish charm again; the one who wants everyone to be happy. I'm sure Jackie is probably more keen to whether that is part of his character just prior to this incident. I keep wondering if it is "age appropriate" or is a small sign that we are still behind somewhat.
Isaac can do the work of a 5th grader, but can read the words of a 7th grader. His memory and vocabulary are improving on a daily basis.
My hopes are to see how well his coordination and demonstrative thought processes improve without the seraquel. If this drug is what has been causing him to be "slow", which is typically by design, then we should be able to start practicing soccer a little more intense than before. He likes it, and he is naturally good at it. This should help us moving forward, since we could eventually get him to some of the team practices to start desensitizing him to larger numbers of people. (he knows the team players, the coaches, and the parents so should be able to tolerate them well)
2 comments:
One of life's conundrums, how is a child supposed to know when to use "the inside voice". One of my grandsons can not ever find his inside voice, the other rarely ever speaks above a whisper. Isaac may be reluctant to speak-up now because he is afraid too many people will hear him if he makes a mistake. We hope that with continued prayers this will show improvement.
GWS
I am so happy to see this progress in Isaac. I hope all works out with transferring to the new facility. This is why I love working with kids, you see progress so quickly even in the little things, but it sounds like he is doing dramatically better. Go get them Isaac.
-Jason
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