Wednesday, September 28, 2011

9-27-11 Day of Reckoning

Mom had the controls yesterday:

This morning he was bright-eyed & "ready to go" by 7:15. We took a shower "(mostly by himself - yeah!), dressed then sat to "inhale" breakfast. Therapy was off and on from 8:30 - 11am. During this time I was able to run an errand :-). He now has a break until 2pm, when he'll have school until 3pm. Today included music therapy (playing piano) & the instructor felt he did much better than previously. Off to the weekly "care conference" to discuss status and go-forward plans. Great work prayer warriors, Great work God!
Care Conference over -- Good news/Bad News. Good: Transfer to CNS could happen as early as TOMORROW! Bad: The brain injury means that he won't be able to participate in some of the activities he's used to, OR they will be difficult for him. Explaining this will be difficult for all parties involved. :-( BUT -- we have our son, alive and doing better than anyone expected, so that is a huge praise!
I'm telling you, here and now, that God is greater than any man. If God says he will recover and play soccer, then he will recover and play soccer. I'm praying for God to tell me what will happen, and I have given him that issue to deal with. I feel like He has called me to action to find out how to help recover reaction times and processing speeds. I wasn't like this yesterday, because I was focused only on how Isaac was doing, but I feel empowered to put my geek skills to good use in research. Weird!
Another child sick:
Brea went to the doctor yesterday and was referred to Children's for further tests. She has an ultrasound scheduled for Friday, and if the doctor is right will have day surgery in two weeks. She and I went down after the appointment, since we were 3/4 the way to OCH, to see Isaac and Mom. Isaac was eating dinner. Mom and I took him downstairs to make "paper bag pumpkins" (interesting craft) while Brea rested upstairs. After craft time was over, and we were back in the room, it was time for Brea and I to get home. I dropped her off and went back to the office to do some of the work I had missed in the afternoon. Mom came home after Isaac went to sleep, beating my arrival at 10:15 or so.

1 comment:

Anonymous said...

Dad' Please look at the hypobaric chamber therapy. I think there is some help for you there. There are several youtube postings about it.
GWS