9-7-11 (Wednesday)

(Red lettered phrases are copies of posts from FaceBook, archived here for those who do not have the opportunity to view it there)

Isaac slept all night 9-7am. Great job, bud! 

Praying today he has less frustration and agitation and is able to make some progress with his communication. Gross/fine motor skills are steadily improving.

Awesome job eating this morning by himself followed by working with Speech & labeling. Even worked on a puzzle. Then OT came in & we pitched fits & fought uncontrollably. They say this is normal, but it's so hard to watch...

Isaac's off to get the EEG test. We met with Baylor Our Children's House and he's transferring Friday morning and they are anticipating a 2 week stay.

Isaac feeding himself Jello. Thanks, Bubbie for making it'!!

The worst thing about being with a child like this is knowing that THEY know what the problem is, just not how to solve it, and being helpless to be able to fix it for them. The only reassuring thing is knowing others have gone through this same malady and returned relatively unscathed.

My uncle, Kenny, made some observations about how the brain stores information into the blank space. During rehabilitation, this information is very much a "real" dream that must be analyzed and determined to be false in order to free it from the memory chain.


I have seen things like this appearing in Isaac, but not enough to say for sure. I hope he will get to rehab where they can be on track for it while he goes through the therapies.

Isaac was pretty tired from his ordeal today. Much like a small child, his brain was overloaded by all the activity. (Actually, so was mine) He finally took a nap at 5 and slept for an hour or so before getting up.

He became distraught at the bed tonight, both from having an accident and from some unknown issue that set him off. It took several minutes to calm him down. I could see the frustration in his eyes when his sister and I left. It was painful for me.